Hi ... ... ... ... Kutiyoung, I am sorry to hear of your troubles. I mentioned this in various...
Kutiyoung, I am sorry to hear of your troubles. I mentioned this in various threads and I probably sound like a broken record but I think Exfoliative Chelitis is connected with xerostomia (insufficient saliva production). You mentioned that you are allergic to pollen and dust and that you have been taking medication your whole life to fix this.
You have a few factors which would cause xerostomia 1) lifelong allergies which I'm guessing causes your nose to be somewhat blocked (hence, cause of mouth-breathing, either unconsciously while awake or while sleeping).
2)medication for allergy (all of which produce xerostomia i.e. dry mouth as a side effect).
3) Depression medication which all have xerostomia as side effect.
4) Inherent anxiety and depression which also causes xerostomia.
5) Smoking which worsens dry mouth.
So I would try to suggest treating this with dry mouth (saliva) gel.Or ask your Dr for pilcroapren.
I actually have a life-long dust allergy as well. It would be interesting to do a poll on this board to see how many members have similar conditions to see if there is any association between different conditions (i.e. dust allergy or rhinitis) and EC.
You said "Without pictures it is hard to give advice, but if your lips are anything like mine, they start off a ulcerated red and then the outer layers of skin dry out, crack and peel. I would often get tiny bubble blisters which would sometimes be quite large. I noticed that my lips were a lot calmer after the changes.
Say for example, if you are having a shower and washing your hair, the soapy water will run your down face across your lips and down your body, this brief contact may be enough to strip off any skin and re-start the whole healing process. The skin of the lips is only a few cells thick. Likewise, using soap (which will most likely contain SLS or equivalent) to wash your face will by just as damaging."
My lips are exactly like you describe. I think the issue of skin stripping is that the skin produces a sort of pseudo-membrane to replace the lost skin integrity (the crust). The problem is that it is not very water resistant so it gets stripped off easily.
Very Swollen Lips in the Morning Plus Sleeping Position
Does anyone else here suffer with very swollen and irritated lips in the morning? My lips always seem worse in the morning and tend to feel less irritated as the day goes on. Also, what sleeping position do people here adopt?
I find it really difficult to sleep on my back and tend to like sleeping on my front. However, this is proving difficult with crusted lips so I just tilt my head to the side and sleep with a travel pillow. I'm thinking of trying to train myself to sleep on my back with my head elevated with a wedge pillow to see if it will make a difference.
Thank you so much for these advices. I will be more careful in my daily foods and start to try liver flush. But i still have a question, i had followed a professor's treatment but it make small difference and should i keep following. The medical treatment involve Betamethasone, Tacrolimus. Do they affect badly?
Does Exfoliative Chelitis cause scarring ? My EC hasn't properly healed yet since the severe reaction initially started so it's hard to assess the damage. Have you experienced scarring due to EC? Does picking versus not picking make a difference?
Hi and thank you for some of the extra advice, and I just eliminated those things to get rid of EC...
Hi and thank you for some of the extra advice, and I just eliminated those things to get rid of EC and now that my EC is nearly gone and I've lost a significant amount of weight since I started (30lbs) now I'm motivated again to lose the weight I've gained over the years since having EC. And I can't remember or my mother can't remember taking antibiotics prior to getting EC I have taken several with having EC from tonsillitis several times, but I'm still following the strict way of eating because I'm finally getting control of my life back!
First let me explain what I feel has give me back my lips after 14+ years of exfoliative cheilitis- then you can go on to read my story down below. Believe me when I say I've read every post on here, and almost the first 20 pages of the Internet about this condition.
I tried these all at once and therefore I'm not sure which one was most effective. I am quite negative about finding a cure for the condition and it would infuriate me every time someone would say "use vasoline!" "drink more water"!
Wow thank you for that groundbreaking advice!!
Here is what I did over a 3 day period (YES 3 DAYS! ) and for some reason a miracle happened and I'm seeing a DRASTIC improvement in my lips.
Vertical lines start to appear in the lips when you are improving. I will follow up on my progress in a week or two.
1. I read in one thread to put a capsule of borage oil on the stomach at night so that was the first part of my routine. This has to do with absorbing fatty acids?
2. I've read this condition could be linked with yeast. The first night I took 2 x 90-billion probiotic capsules, the second night 4 x 90-billion capsules and I will continue with a normal amount in a week.
3. & 4. I've read Daniel Millers Blog and watched his videos- his method involved exfoliating smothering the lips with Aquaphor.
This is a "moisture healing method" Thought this was total bull but I still wanted to try everything and I have to say I really think is why my lips improved. My method is a bit easier. In the morning I exfoliated the F out of my lips with the scrub from Victoria Secret . You can use any scrub- in fact try a more natural one with less chemicals. After you scrub for a minute- make sure you use both your finger and lips to exfoliate, then rinse with water.
Then- apply a HEAVY HEAVY layer of a great lip balm. I put so much on my lips the skin was not even visible.
Then leave it and let it absorb- go on about your day. Do the same exact thing before bed. I use Nuxe- it feels like butter heaven.
His method involves putting on Aqauphor every 30 mins- but aint nobody got time for that!
5. I was eating low- sugar. Smoothies, salads, and drinking about 20 oz of bone broth at night. Stayed away from eating actual meat. Basically a vegan diet with a bit of eggs and bone broth. I also was sick and had not had sip of alcohol for 7 days. I drank coffee because I'll never give that up. I know diet plays an important role but I can hardly imagine my diet made an improvement in just 3 days. Who knows. Just try it.
Background info ( you don't have to read this if you got what you needed )
My health info:
Chronic yeast infections and yeast skin outbreaks, Chornic IBS- constipation, easily got UTIS, issues with my monthly cycle and pms pain, migraines, and food sensitivities.
Took Accutane at age 13 for on and off 4 years.
I totally abused antibiotics. Also, I'm extremely stressed ALL THE TIME and can't get that under control.
These are things I've tried:
Comprehensive Stool Analysis to check for parasites/ yeast
Hormone Metabolite Assessment
Comp. Metabolic Panel
Liver, Kidney, Inflammation, Thyroid tests
Vitamin Deficiency Test- I was lacking B12, Pantothenate, Biotin, and Choline.
Saw one of the BEST gastroenterologist in country for digestion.- he told me to eat crackers and buy fiber supplements- What a joke.
Every diet you can think of
Finally I want to say we all have this condition for some unknown reason, and this method may not work for you. Just know that many people have cured themselves without spending 1000's of dollars.
I really think if you cannot find a cure go see an Oral Pathologist.
The lips are a mucus membranes- they are the best people to see. Make sure to call first and ask them if they have dealt with this issue. Please feel free to reply and ask questions.
Also, just wanted to say I found more information on Exfoliative Chelitis in HIV patients which s...
Also, just wanted to say I found more information on Exfoliative Chelitis in HIV patients which supports the xerostomia/dry mouth/lack of saliva hypothesis for EC.
This quote is taken from a paper called " Oral Manifestations of Paediatric HIV Infection " which shows pictures of a HIV patient with crusted lips i.e. Exfoliative chelitis
which the article describes as "Dry lips with crusting, resulting from xerostomia"
; "Xerostomia is a common symptom of HIV-infected individuals and has many potential causes. It is more common in HIV infected children than HIV-infected adults. The causes of xerostomia include HIV infection itself, therapeutic antiviral and antimicrobial drugs, prophylactic medications, antiretrovirals (such as didanosine), gamma globulin, or lymphocytic infiltration of the major salivary glands. Clinical features include dry mouth (Figure 16) and severely reduced salivary flow rates. Reduced salivary flow results in a mucosa that is desiccated and is at higher risk for opportunistic infections such as candidiasis and increased caries. Xerostomia may appear with or without parotid swelling. No definitive diagnostic criteria exist for xerostomia. (Flaitz & Hicks 2003; "
Look at the pictures in the article. Note how they look exactly like EC (Are in the same place as EC crusts)https://www.researchgate.net/figure/221919824_fig11_Fig-16-Dry-lips-with-crusting-resulting-from-xerostomia
IT could be that EC results from some combination between xerostomia and lowered immunity.
Glycerin Borax Treatment of Exfoliative Cheilitis Induced by Sodium Lauryl Sulfate: a Case Report ... ... ... ... Kobkan Thongprasomcorresponding author ... Author information ► Article notes ► Copyright and License information ► ... Go to: ... ... ... Abstract ... ... This paper reports on the results of a case study of a 19-year-old female who presented to the Oral Medicine clinic with a chief complaint of scaly and peeling lips. The lesions had persisted on her lips for more than 7 years and were refractory to previous treatment. Her physician’s diagnosis was contact dermatitis. We diagnosed thi ... [This message is long. Retrieve the whole message]
Patch Test UPDATE: Propylene Glycol... Potential Cause?
I've had EC for two and a half years now, and my biopsy showed a potential allergic reaction. I had a patch test and tested positive for propylene glycol which is a preservative found in many foods and topicals. It's even found in some topical steroids which might explain why some steroids and lip balms made my lips worse.
I think a lot of people are allergic to some sort of preservative or chemical in processed foods or creams that they dont know about which could cause exfoliative cheilitis. I'm going to go on a diet/skincare free of propylene glycol for 1 month to see ]if my EC lets up and I heal. Hopefully I have found my cure and this is the end to my difficult problem. Godbless to everyone else on this forum and I wish the best for everyone struggling with this debilitating disease.