There's some mixed results for witch hazel in the seborrheic dermatitis community. If you haven't already, I recommend reading up on Borax. It is actually used by doctors for treating vaginal yeast infections and has a better reputation in general for its antifungal and antiseptic properties and its used in a wide variety of applications. It has an overall bad reputation in the medical world however because of the concern for causing birth defects, however, this is only when consumed at very high levels. In fact, borax is less toxic than salt, which has similar birth-defect causing effects when consumed at out-of-this world proportions. All it is a form of Boron, which is actually quite an important mineral for optimal human health.
I'll keep you updated with the ketoconozole/borax treatment.
Rala, Sorry to hear you have had this condition for so long. I have had mildly peeling lips for 10 years but I didn't realise I really had a problem because I could control it with constant Aquaphor application. I juts thought I had dry lips as a side effect of Accutane use. However, I made the huge mistake of having a lip filler six months ago and my EC basically exploded into one of the worst cases I have ever seen. This had genuinely been a traumatic nightmare so I can imagine what it must be like to have this for years (I have other long term health problems so know what that is like). Anyway, my thoughts as to why talking less makes the peeling cycle less severe is that the condition is related to xerostomia and talking less means the mucous membrane at the edges of the mouth (the labial mucosa) gets less dehydrated from contact with air and thus less injured and irritated. Actually, given that you are familiar with Daniel Miller, you might know that he said in numerous videos that his inner lips got constantly dry, were the hardest to heal, and that his recovery seemed to get a boost when he quite his call centre job. Again this corresponds to the problem being to do with excessive dryness of the labial mucosa (due to xerostomia).
I wanted to thank this forum for helping me diagnose my AC. I studied this blog on my way to the health food store to hunt natural remedies. One week of the following regiment cured my AC. I was having cracked dry lips, painful corner slits that were raw and nearly bleeding, an itchiness in my mouth and tongue, colds sore-like mouth corners, you name it.
1. Concentrated Oregano oil drops (3 drops in water, 1-3x per day) Brand: Oreganol P73
2. A probiotic dissolve pill dedicated to oral health (1x day)
3. Oil pulling, using a combination of 1 tbsp virgin coconut oil and a few drops of tea tree oil (20 min per day, 2x day) Please be sure not to swallow this mixture. Tea tree oil should not be ingested but can be swished around in low quantities.
4. To soothe the corners of my mouth, I applied a clean dose of coconut oil with a drop or two of tea tree oil.
Within a week, the slits had sealed, my lips no longer chapped, and the itchiness was gone. I was effectively cured. I am continuing the regiment, oil pulling just once a day now, so to not have a relapse.
Daniel I have followed you for years. I have had EC almost 16yrs and still not managed to cure. I think you have dedicated a lot of your time to people to help them. And honestly I see nothing wrong with expecting a little something $ in return.
I think when I'm dedicated to following a strict EC cure journey I would definitely subscribe and pay a monthly subscription.
In my 20+ years of suffering through EC. I am coming down to similar conclusions, of it being caused / related to dry mouth. The causes of dry mouth are several, like you and others have posted, so to find a universal cure might not be possible. Perhaps this is why EC heals for some and not for others even though they used the exact methods that cured one person.
On a side note, I have also tried numerous diet and I feel the same as you, paleo seems to be the most helpful.
When applying vaseline or aquaphor, make sure your lips are always moisturized and never let them dry out. That should stop the buildup of dead skin. If you see any changes like new skin developing (you'll notice it by the grayish color) then your lips are healing. Then again, there's a chance it might not work for you. It all depends on how damaged the dermis is.
If aquaphor or Vaseline fails, then I recommend you purchase Gloves in a bottle. From what I can see, your lips don't really look that bad, so Gloves in a bottle is very likely to heal you. (Mine was just as bad as Daniel Miller's and it worked for me). This product healed that white line you mentioned.