You're not being negative, you're being realistic. I'm just curious with how people's lips reacted to the leave it alone method, and how it relates to mine. Even though I don't know the cause of this condition, I figured since people have posted pics with saying there cured from this method, I might as well try it in case it cures me for some odd unknown reason. One thing I can't stand is the placebo effect with ec. There's so much false hope. I remember with the Lily Epsom Salts method, she talked about how this was it, it cured her, and everyone was hopeful and bought it. Later on she says it didn't work and her lips still peel. Same, thing with the leave it alone method/ constant moisture method, everyone was hopeful and talking about how this was it, later on there are people that say it doesn't work. The main issue with me is that I have a hard time managing my lips and when I'm managing it I still have to wipe my lips constantly. The jaw thing you brought up keeps bothering me. I wish there was someone that has ec, that got braces and jaw surgery, so we would know how it affected there lips.
You mention "excessive oxygenation of the upper layers of skin" in EC patients.
I am wondering what you think of my hypothesis that there is a link between EC and xerostomia. My EC has been Horrendous. Over the last week, I have seen 80% improvement by applying saliva gel to my labial mucosa (constantly throughout the day, whenever I felt it wear off, so as constant as Aquaphor).
Here is my post from another thread which explains my thinking.
There are various different causes and levels of severity of dry mouth.
If you have dry mouth from simple dehydration, then the dry mouth is quite transient and can be alleviated by drinking water. However, if you have a dry mouth due to a systemic illness (like Sjoren's syndrome, or anxiety disorder or HIV, or some kind of salivary gland dysfunction), then the dry mouth is there persistently 24 hours a day, every day. It constantly causes irritation of your mucous membranes inside the mouth.
When that happens, drinking water is not enough because it only temporarily wets the mouth.
Moreover, saliva contains various natural antimicrobial properties and enzymes so artificially replacing the saliva by just wetting the mouth isn't really curing the problem.
What I'm trying to figure out here is the common factor between various types of known patient population groups who suffer from Exfoliative
I want to focus on what we know for sure, from independently verified research, to come to a hypothesis or conclusion.
We know for sure because it is verified in independent research that Sjoren's syndrome, a condition that effects saliva production in the mouth, causes Exfoliative Chelitis.
We know for sure, because it is verified in independent research, that AIDS patients suffer from Exfoliative Chelitis. We know for sure, because it is verified in independent research that those people who have Exfoliative Chelitis of unknown origin, have a much higher likelihood of Anxiety Disorder and Hypothyrodisim. And we know for sure, because it is reported in academic literature, that lip filler patients report they experience desqueamation (exfoliation of lip skin).
So to figure out what is the root cause of Exfoliative Chelitis we need to ask what do these various , extremely diverse , patient groups have in common. What is the common factor?
The answer is xerostomia (or dry mouth).
Research concluded that Oral Candida Infection resulted in Exfoliative Chelitis in AIDS patients. Well, it may well be true that candida contibutes to EC in aids patients. However, oral Candida Infection or thrush on average does not produce the symptoms of Exfoliative Chelitis.
So there has to be another factor. Why does candida attack the lip skin specifically in HIV patients. since a) HIV reduces salivary excretions and b) antiretroviral therapy results in dry mouth, it could be argued that a dry mouth causes Chelitis (the damaged and vulnerable lip skin is then a good medium for the candida to proliferate in immunocompromised patients).
Similarly, Sjoren's syndrome patients also get Exfoliative Chelitis. It is a very different condition from AIDS. The condition effects saliva exertions in the mouth. However, Sjoren's syndrome patients with EC also demonstrate Candida Infection . Why? Because the dry mouth, without proper antimicrobial properties, is vulnerable to secondary infection by candida.
So my conclusion is that candida infection observed in both Sjoren's patients and AIDS patients who have Exfoliative Chelitis is secondary to primary cause which is xerostomia.
Similarly , Exfoliative Chelitis patients with idiopathic (unknown cause) , according to literature , have a much higher likelihood of having an anxiety disorder.
Well, we know, because it is verified in independent research, that anxiety disorder results in a ) mouthbreathing and b)generalised dry mouth. What is more, a lot of anxiety disorder patients are on medication which increase the chances of having a dry mouth.
Not everyone who has xerostomia has EC but pretty much every population of patients who have EC have a high likelihood of having xerostomia.
So how come EC occurs in some people and not others with Sjoren's syndrome?
I can't say definitively. Maybe it has to do with severity of the xerostomia and other unknown factors (immune system, other lifestyle factors, anatomical structure of mouth ect). I just can't say. I would need to do independent research to establish this.
What I think I can conclude, with some, confidence, is that there is a high correlation between Exfoliative Chelitis and Xerostomia.
I can supply references for all my claims here if needed.
No antibiotic use prior, but i was on birth control for about 4 months and decided to stop it just in case it was causing the peeling. Never got tested for celiac, but i don't really have any of the other symptoms associated with it
There's some mixed results for witch hazel in the seborrheic dermatitis community. If you haven't already, I recommend reading up on Borax. It is actually used by doctors for treating vaginal yeast infections and has a better reputation in general for its antifungal and antiseptic properties and its used in a wide variety of applications. It has an overall bad reputation in the medical world however because of the concern for causing birth defects, however, this is only when consumed at very high levels. In fact, borax is less toxic than salt, which has similar birth-defect causing effects when consumed at out-of-this world proportions. All it is a form of Boron, which is actually quite an important mineral for optimal human health.
I'll keep you updated with the ketoconozole/borax treatment.
Rala, Sorry to hear you have had this condition for so long. I have had mildly peeling lips for 10 years but I didn't realise I really had a problem because I could control it with constant Aquaphor application. I juts thought I had dry lips as a side effect of Accutane use. However, I made the huge mistake of having a lip filler six months ago and my EC basically exploded into one of the worst cases I have ever seen. This had genuinely been a traumatic nightmare so I can imagine what it must be like to have this for years (I have other long term health problems so know what that is like). Anyway, my thoughts as to why talking less makes the peeling cycle less severe is that the condition is related to xerostomia and talking less means the mucous membrane at the edges of the mouth (the labial mucosa) gets less dehydrated from contact with air and thus less injured and irritated. Actually, given that you are familiar with Daniel Miller, you might know that he said in numerous videos that his inner lips got constantly dry, were the hardest to heal, and that his recovery seemed to get a boost when he quite his call centre job. Again this corresponds to the problem being to do with excessive dryness of the labial mucosa (due to xerostomia).
I wanted to thank this forum for helping me diagnose my AC. I studied this blog on my way to the health food store to hunt natural remedies. One week of the following regiment cured my AC. I was having cracked dry lips, painful corner slits that were raw and nearly bleeding, an itchiness in my mouth and tongue, colds sore-like mouth corners, you name it.
1. Concentrated Oregano oil drops (3 drops in water, 1-3x per day) Brand: Oreganol P73
2. A probiotic dissolve pill dedicated to oral health (1x day)
3. Oil pulling, using a combination of 1 tbsp virgin coconut oil and a few drops of tea tree oil (20 min per day, 2x day) Please be sure not to swallow this mixture. Tea tree oil should not be ingested but can be swished around in low quantities.
4. To soothe the corners of my mouth, I applied a clean dose of coconut oil with a drop or two of tea tree oil.
Within a week, the slits had sealed, my lips no longer chapped, and the itchiness was gone. I was effectively cured. I am continuing the regiment, oil pulling just once a day now, so to not have a relapse.
Daniel I have followed you for years. I have had EC almost 16yrs and still not managed to cure. I think you have dedicated a lot of your time to people to help them. And honestly I see nothing wrong with expecting a little something $ in return.
I think when I'm dedicated to following a strict EC cure journey I would definitely subscribe and pay a monthly subscription.