We have a relation who has what sounds like exactly the same illness your uncle has.
He also has cardiac amyloidosis. He is only 34 years old with young family and unable to work for the last 6 months. He is doing his best to eat healthy foods but has little appetite and is now very thin.
Could you please share with us information that gives hope of healing for this very sad situation.
Thank you very much
This was a really good question - I am facing metabolizing issues due to mercury poisoning and am wondering if you have found your answers - I don't see what the date was when you posted? Hope you can respond and if you do, wondering where you purchased the glyconutrients. thank you
... (The following is updated from a post from 10 years ago. I have no association with any ”glyconutrient” company or any nutritional company at all. I have a background in healthcare and biochemistry, and am a proponent of nutritional supplements, and I was asked to investigate the science and claims of a popular company for a friend of mine. Here are some of the things that I found). ... ... ... ... A popular company that promotes ”Glyconutrients” claims that there are essential sugars that your body needs, and that their supplement has all 8. ... ... ... ... If you had an infection, and I gave you an a ...
[This message is long. Retrieve the whole message]
Wow. I have been duly erased from this forum. Searching back over the entire forum, every post that I made, with all the references and research and facts are gone. Someone took an inordinate amout of time to erase every post I made over the years. Replies to my posts, even repeats of my posts by other people over 10 years ago, are still listed. Over and over people mention me by name in their posts, but someone was concerned enough about what I had written to take the time to erase.
The posts by the salespeople working for the company who disagreed with me, with their non-sensical repetition of information the company gave them (that they didn't even understand) are all still posted. It is as if someone tried to leave all the MLM company propaganda, and remove the actual science, (with references from scientific journals, not just opinion) so that no one would learn the truth of the scam that this company promotes.
Hmmm, I think I took the time to copy many of my best posts into a document file so that I would have the references and information in case this forum ever folded. I will have to look for it, and post it them again, so that people who are searching for some objective information will have somewhere to look for objective, scientific information.
Sorry. I have been on M****tech products for 10 years, along with my husband. My husband had Multiple Myeloma and has not relapsed since being on the product. I rarely get ill, and I am a Type I Diabetic for 50 years. The product is great, and the poly-saccharides are essential to human life. I know other people, who have outlived their doctor's misinformation, that are still alive and taking the product. You are so wrong!!!!!
This forum has been quiet because no one yet seem to understand glyconutrients yet, however I have decided to start taking them for intracellular candida and the die off in my throat has been horrible. I can barely stand it. Glyco nutrients make up glycoproteins which are essential to immune functions and proper interaction with T cells. There is a connection here to anyone suffering autoimmune, allergies or chronic infection by candida or lyme. We will have to waoit until the ridicule stage is over for mainstream scientists to accept it.
I see this forum is pretty dead? (Perhaps thats a bad sign)
I wonder how many people with autoimmune diseases use glyco's and see some real solid benefits and got off medication.
Me myself I am using various Mammatech products (which are very expensive) and my LFT for autoimmune hepatitis look very good but I'm still using steroids though so I can't really tell whether it's from the Glycos or the meds, I feel no improvement in energy.
I am just scared to wean off the steroids because in the past when I did that the hepatitis would mercilesly flare back up again and I had to get back on high dogages prednisone which would take a year to taper back down to low dosages and my doctor highly advises against tapering off once more since it could result in liver faillure if I get a bad flare.
My mother however has Colitis Ulcerosa and uses the same products and claims she has no more digestive symptoms and no more anemia and is no longer on meds and feels great.
Not that I don't trust my mother, but she is the type of woman who's highly suseptical to the placebo effect.
Why can't I just find some genuine double blind placebo research on these products for autoimmune diseases?
All the testimonals online are biased to say the least, and most of them written up by associates trying to sell the products. On Pubmed I can only find publications by wellknown glycobiologists that basically state that glyconutrients are a scam.
Mammatech claims to have research done on treating AIDS patients and Hepatitis C patients in double blind placebo studies but where are those publications?
Just don't want to take unnecessary risk tapering down prednisone.
My mom also have cancer (Thymic Carcinoma).diagnosis on 6/15/2011
the Size of tumor:7.2x 5.5cm.
She is 54 years old.Symptoms Findings on 12/2010.continous cough for one and half years.Doctor predict the chemotherapy and radiation treatment will not be good result,So She don't want to cure by chemotherapy and radiation.
I would appreciate if other treatments and experience with this type of cancer naturally. Is it possibly cure by natural therapy? I understand this is a rare type of cancer,
but hopefully can help us become more informed.
Thank very much!
Bulky lobulated soft tissue mass over upper mediastinum,showing mild homogeneous enhancement
It measure 7.2 x 5.5cm on largest transaxial plane, and about 6.5cm in height. It lies above
the level of aortic arch immediately posterior to manubrium, which shows some erosion of the
posterior cortex,suggestive of local infiltration.
This upper mediastinal mass encases the brachiocephalic vessels.Bilateral brachiocephalic arteries
remain patent,while bilateral brachiocephalic veins and superior vena cava are occluded.There are
enhanced collateral veins over chest wall and dilated azygous venous system.
There is mass effect with mild compression of the cervical part of trachea.Thyroid gland is unremarkable.
There are multiple enlarged lymph nodes in bilateral supraclavicular fossae,around carina and adjacent to
aortic arch.No enlarged hilar lymph node.Major airways are patent.There is no gross pulmonary mass in both lungs.
No pleural effusion.
Transient arterial triangular enhancement in left lobe of liver,which becomes homogeneous with rest of liver in
portovenous phase,suggestive of shunting.Adrenal glands are not enlarged.
Bulky upper mediastinal mass obstructing bilateral brachiocephalic veins and SVC,Features are suggestive of lymphoma.
Biopsy helpful to confirm diagnosis.Other differential diagnoses such as thymoma is less likely.