I hope you had a positive experience after your surgery. 2 1/2 years after mine I still suffer. If I could do it all ovewr again. I would never of had it. I had a stone on the edge of the bile duct they said I could possibly die if the duct was damaged.I think I would have taken my chances.
www.arm.org. Jesus Christ, may you live to be 100+ years old.
I am thinking about the surgery for the Gallstones in my kidney. But you really make me think. I was scared and depressed before now I am depressed, depressed, depressed and fed up. It seems every doctor wants to get my body part to put money into their bank accounts. I am poor and it seems that poorer people always suffer.
Can't you sue to doctor you originally started your surgery with. There must be a way. Just reading your story makes me very angry right now, that people can get away with things and cover up things in the medical profession.
I feel your pain but I like the fact that you let your story be known, it's probably going to save a lot of people from surgery. Do you have any advice to give me, because I need it right now and also a friend. God Bles!1Scared.
Hello, I was a healthy 32 (something), married with 3 children. One year ago today, I had my gallbladder removed, then a bile leak occured one week later. I kept telling everyone from my family to the dr's. that something was wrong. The bile leak covered the entirer right side of my body and went into my pelvic region, a stent was put in and taken out within three weeks after surgery, diarrhea is a major problem still, and the pain starts at my right side where the gallbladder was and goes around to my right shoulder. My back feels numb if I stand to long. I have fought with this for a year. I read your story 2 nights ago Elizabeth and I cried. I feel like I could have wrote it. Our cases are very similiar. I went to a new surgeon today. Explained everything that has happend to me and he provided me with some explanation onto why I was having so much pain. I will be going back into surgery within the week for scare tissue that has built up on the liver and the peritoneum. He is willing to go in there and cut over 100 of these with no gurantee that he will get the one that is causing all these problems or that these problems will even go away. My question is has anyone out there ever heard about this or had it done. I looked all over this web-site and i can't find anything.
Alot of my problem started by not researching my doctor through enough. And by not going on my gut instinct also. My choice in dr's today is highly rated and alot older than I am. The last dr.was only 2 years older than me and had only done these procedures for the last 6 years.
I want to check all my avenue's and I don't have alot of time. Also, just to let you know if I would have seen your web-site before I would have tried to flush my system instead. Any info would be greatly appreciated.
i completely agree with your statements. i can also relate. in june of 2003 i went in for my gallbladder surgery. after surgery i was uncomfortable but god knows i would have given anything to feel that way in the next few months to come. the day after my surgery i knew there was something wrong i went back to the er the night after my release from the hospital, they told me i was bloated and had me take home an enema. a week later i was much worse. i went back for my two week check up and complained about it to the doc that did my surgery he told me to get off my pain meds and come back if it got worse. two days later the pain was so excruceating i went back to the er. they told me i had a small bile leak and sent me to another hospital to have a small stint placed. afterwards i felt worse. i couldnt eat or sleep or walk for that matter. i complained again of pain and they told me it was pancreatitis. i refused to hear it. i left the hospital
aginst medical advice and although i was advised to go straight to another hospital they refused to get me an ambulance. at the next hospital i went to they ran the same tests over and told me i had to go to the biggest hospital in the state because no one else was equipt to handle my case, so i went. from there they ran more tests and heres what they found (of course i dont remember what they told me because by then my mind and body shut down from the pain they told my husband)i had a large bile leak and a pocket of 3 different types of fungus from the bile leak. they gave me 24 hrs if the pocket burst i was dead and they couldnt reverse the effects of it. they stabilized my condition with antibiotics and went in for surgery. i was 87 percent covered in bile they had to wash me out not just once but had to cut me open a second time. i had 5 tubes coming out of my body i didnt eat for two weeks and hadnt walked for about the same. they still didnt fix the leak by then and told me that it was very risky and couldnt give me any risks of the proceedure or % of death. i chose to get a second opinion. i went to one of the best hospitals in the country and they told me they could fix me with very slim chance of any complications. the relief from just hearing this made my heart soar.i went in december 2003 and got fixed. i no longer have tubes or take medication. i still get winded from doing too much and have the diarreah most people talk about with this but ill take it gladly over the rest of the problems ive had. please keep in mind that this happened one month after i got married and i have 3 small children and this has nearly destroyed our marriage our lives and our childrens dreams. not to mention the rest of our family. i thank god for all of them and hope to god i never in my life take them for granted . one piece of advice for anyone out there who has surgery no matter how small research it and if you feel something is wrong it probably is get it checked out. getting it checked wont kill you, not getting it checked might.
How can they get away with this? When I read your story I cried. I had my gullbladder removed three and a half weeks ago. I share your experence with doctors I too was told all these things. I'm not recovering well. I've been made to feel like it's my fault somehow or that it's all normal. I'm not getting any better, The pain on my right side under my ribs is not getting better. I can't move or lay on either side it's like I ran for 50 miles almost crampy pulling at times stabbling pain. Every once in awhile it feels like something pops? There is pain through out my body my lower back, ect. My doctor won't see me. This sergon didn't even release me from the hospital, she sent her husband. As they wheeled me out the day after sergery I through up all over the nurses station, and I was running a fever. they wheeled me back in the room and called the doctor. They still released me. I was told to call the next day. I did the doctor didn't see me in fact I didn't even talk to my doctor again afer my sergery untill five days later. That's only because I went to the Er the night before. Now the doctor wont answer my calls and my general doctor says he doesn't want to get involved. I have a husband 4 children and I'm 26 years old, I feel like I'm dieing.... I don't want to die. The only expination my sergon gave me for all this pain she said, "she's never heard of before", is I'm getting older and it's taking longer to heal. I don't bye it. Is 26 now considered old or did she not read any of my medical records. For anyone eles out there who is thinking of having this sergery done I beg you please to you're research first. I only wish I would have had a chance to.
"..differently?" you mean: ( would I) not stand up for truth and persist...
and I ( as many others, I'm sure) am glad you did persist, and discover and expose the truth of the ugly underbelly of the medical model.
I mostly just wanted to respond to this post to ask whether you'd taken (what I consider to be) the next, and most liberating step -beyond the incredible energy you must have found though surviving this, and advocating for others- to *heal*** the toll that this has taken on your spirit and maybe even REVERSE the damage done you physically.
As the liver is the seat of the emotions, it could easily become the dump for all the pain and anguish suffered, not to mention the ABOMINATION of the adage, no, oath: "first, do no harm"
Have you looked into liver flushing, forgiveness (not so much for others, but yes, they will have their 'reward', but more for your own sake, and I don't mean to be overly-simplistic here, or condescending...)
I believe the power of healing is stronger than the suffering you've experienced,
(or those involved) and I just wonder,
when you ask:
would I do it differently?
you **have left the door open to good,
to 'letting go' of (even) being right?
Andreas Moritz and others here offer much in the way of encouragement and guidance in one's Self taking back all that has been stripped away, through the terrible course of events...
Hi everyone. I am new to the forum. I wanted to write for any help or advice I can get. I have had this pain under my right breast more so almost in the middle of my stomach. It actually spasms. I can feel it jumping at times, etc. I let it go on for months until I finally decided I HAD to get it checked out.
First ER visit= they did blood work- amylase levels were high. He wanted to put me in the hospital- I said no, I have a nine year old son I have to take care of, and I am not going in the hospital.
I went to my family practioner to do more blood work- amylase returned back to normal. Still the pain persists, so yesterday I had a CT scan of the abdomen wtih contrast and he said it showed slush in the gall bladder. He said he was going to let the surgeon look at it. I really do not want to have it removed. Is there a way to get rid of this slush?
I think when I was small around 9 years old I was in the hospital for stomach pains and they said I had parasites which I was able to get rid of so I am wondering if I may have them now. ANy help or advice so much appreciated. I have been reading and reading but I haven't found anyone to say they had SLUSH in the gallbladder, only stones. Thanks so much everyone.
How did you find out that your bile duct had been nicked. I am 18 months post op and still have diahrea with bile on a regular basis. My body has changed immensly and my lower abdomen is tender to the touch. My doctor dismissed all my symptoms and prescribed nexium for me.
I wish the best for you
Can I ask you what your symptoms were?? I had my Gall Bladder removed cause of Backpain I was having and right after the surgury my stomach ballooned up I looked Pregnant, (Im a man), I was told the bloating would go down it was just the gas they blow into you for the operation. Its been over a year and my stomach is still Huge and now ever since my Operation I get yellowy Bile leaking out of my butt(Ya Nice ehh) and when I go to the bathroom I have to wipe 50 times, I heard of things liek anal Leakage and Bile Duct problems Iwent back to him and he wouldnt even listen to me and said no you dont ahve any of those problems without testing or anything!! 4 Months later I had the exact same pain in the same spot and it turned out to be a Kidney stones, Had another operation for those and havent had the pain since but still have the Bloating and Bile pouring out of me and its so acidity that it burns your butt!! Anyone else have this problem?? Chris sadler from Ontario Canada Operation was done at Port Perry Hospital in Ontario Canada by a Dr Stryde..
Toxic liver problems i.e. liver infections from the gallbladder surgery can be greatly reduced and maybe irradicated by a little used cheap substance we use in the emergency room. Activated charcoal is powerful stuff.
Too precautions only. Be sure to use 8-10oz of water with each Tablespoon of the powder when you drink it. Also if you are taking medication make sure it is 2 hours away from a charcoal drink. Packs of this charcoal can be mixed with a little ground flax and placed over the liver during the night and day as able.
I just finished reading a new book on charcoal.
by John Dinsley
from gatekeeeper books
Uchee Pines Institute in Seal Alabama has been using charcoal successfully for years. So has Wildwood Institute in Georgia
Hello, Read your story, and am wondering why we all as victims can't unite and converge against the fraud of the U.S.A. Medical Society within a Federal Court and stop it. The people that are being taken advantage of are trusting, naive, innocent people that do not deserve to be hurt. There is no law over our doctors. I am thinking of forming a business that will be a medical police station since none exists. I want to present an initiative to change our constitution concerning appointing medical disciplinary boards by each governor of every state. We if do not act upon this harm...it will continue as it has. There is no reason for any country upon this planet to hurt people's body for money flow. Our whole world is playing a game with paper money. I was hurt severely also by a gallbladder surgery but by a knife with a huge incision and scar and have died daily from its ugly ramifications. I was scammed and conned and cunned by two disgusting, ugly, men that called themselves doctors. I am going after both of them. Each has long ago left the state where they hurt me but got away without even a lawsuit because of our dishonest system which does not have to even exist. Any help from you will be deeply appreciated.
- surgery will not remove stones from liver (intrahepatic bile ducts), so it will not solve all the problems associated with intrahepatic stones
- you will loose one important organ
- there is a chance that you still suffer attacks, even after gallbladder was removed
- high chances of developing chronic diarrhoea after eating
(it is estimated that at least 15-20% of people without gallbladder endup with chronic diarrhoea or with IBS (Irritable bowel syndrome))
- Higher chances of getting colon cancer
- Higher chances of developing heart related illness (liver feeds heart)
- higher chances of developing cholesterol problems
- higher chances of developing other chronic illness that are associated with poor liver function like (FMS, CFS, Cancer, Allergies, Depression, MS, Parkinson's, Alzheimer's, ...)
- Death (every surgery carries a risk - sometimes people die)
Read next messages to get an idea.
I have been collecting those stories for the last 3 years. It is possible that some of the web pages that I saved, are not available any more online. Because of that, I will copy each and every story here in this forum ... there are many reasons ... but don't expect your doc to tell you about them ...
My sister-in-law had her gallbladder out and still had stones. They were in her liver. She did the liver cleanse 4 or 5 times and got stones out each time. That was 6 years ago. She has been doing liver cleanses every 3 to 4 months abd she feels great.
I had my gallbladder removed 2 yrs ago.. But I have recently been having pains like I did when I had my attacks.. Does that mean I can possibly still have stones floating around? Any help would be appreciated.
Did you have pains like this? What did your pains feel like?
I had my gall bladder removed in Aug. of 2001. There were no stones.. they said it had lost it's ability to contract and empty. They removed it through the scope.
Since then I've developed diarrhea, lost 24lbs, and have pain in my left upper back area below the shoulder blade. I can't eat anything that is high in fat, it causes cramps and within 15 minutes I have diarrhea. I also have problems with fatigue that comes and goes with no specific pattern.
I've put myself on a low-fat diet that seems to have slowed the diarrhea, which in turn has slowed the weight loss. I know I need to go to the doctor, but I'm still trying to pay off my gall bladder surgery. Any advice would be greatly appreciated!!
I have had much the same problems. The pain in the back is terrible sometimes. I hardly ever go out to eat anymore because of the dumping syndrome. But there are meds to help with that. I can't take thme personally because of meds allergy, but my Nurse practitioner gave me one to help. I'll have to ask her what it was called when I go there this afternoon.
The fatigue I suffer from is from Chronic Fatigue syndrome and Fibromyalgia. (FMS has trigger points located in the same area as you describe your pain as being in.) Testing is the only way you can be diagnosed with FMS or CFS, I should say Blood testing.
Is there an FIA (Dept. of Social Services) near you? If you don't have insurance you may be eligible for medical assistance even if you aren't eligible for State aid. You should call them and ask what forms you need to fill out, what type of info they will base their decision on and where and when to fill the paperwork out. You may not be eligible for their help, but they might be able to point you in the direction of someone that can help you.
I hope this info was helpful. I hope you feel better soon!
I TOO SUFFER FROM Chronic-Fatigue-Syndrome AND FMS ALONG WITH THESE ABDOMINAL PROBLEMS. MINE SEEMS TO BE GERD. HOW DO YOU DISTINGUISH WHICH PAINS ARE FROM WHAT DISEASE? SOME DAYS I JUST FEEL LIKE EVERYTHING IS WRONG WITH ME PHYSICALLY. ALSO, DO YOU KNOW IF THERE IS ANY CONNECTION BETWEEN FMS AND GERD? ANY INFO AT ALL WOULD BE APPRECIATED.
My mom had trouble digesting fats after her gallbladder surgery. Her body eventually adjusted. It's only been half a year for you, give it time. Or it could be unrelated to your gallbladder surgery.
I have a few links that a friend of mine sent about FMS and the problems that go along with it. If you would like, you can email me and I will send the addresses to you.
I don't know if there is a true connection but they do seem to go hand in hand.
meanolered, I have been told for 10 years i have fibermalgia. and now they tell me liver desease, after a biosey they took....i am too confused on what pains are from what.....i notice that i was feeling all the little pains that they said i should not be experiancing....after sergery ( nov 28 ) then had a heart cath, for when coming out of sergery i had wrong heart beats. and the good news no artery clogs....but where they put the needle in for cath still hurts and that was done on dec 10. and they are telling me they dont see how...i think if you have fibermaligia, which as far as i know there is no blood test for it, we feel thinks for alot longer and alot more intence than others do when it comes to nerve endings....char
While there may be no "blood work" that can tell you you have it or you don't, there is one (a mono screen, I think its called) for CFS and since CFS and FMS go hand in hand (for the most part) that was how I was diagnosed.
I am printing this article to take with me to my next appt. with my primary doc. I don't know if it will do any good, but looking for something is better than doing nothing.
red head well you just that mean ole red head to that doctor....seems like some of these doctors just seem to busy to take time out for really hearing thier patients...i have been begging for something to take my pain away and even gastrol dr. tells me i dont know what it could be...???realated to gastrol that would cause this kind of pain...has i read this site and hep site i do believe differently now....how can so many of us have nothing.
I have the same symptoms as you, robin3. Dumping is the most stressful. And it does not matter what I eat. I eat healthy nutritious foods, whole grains and they treat me the same as greasy pizza. And no, it does not get better with time. My sister is the same way and I have a college that has suffered so for years. The medicine they like to prescribe is Bentel which is an anti-spasm med. meant to stop the spasms in your gut. I use it and it USUALLY works. The colleague who has been like this for years says that the Bentel no longer works for her. And her pain has increased putting her in the hospital a couple of times.
I think that the Docs ignore this whole issue. Any pattern like this should be obvious to the whole profession.
A friend who does consulting told me of one of his clients who complained of the same thing. Her doc said “oh you had your gall bladder out?” “Yes how did you know?” DUH. He prescribed something and my friend gave me her number. If I find something new I will post. Other wise
Hey sorry for sounding witchy but three years of this is really getting to me…..
I to suffer from everything everyone is talking about and my doc will not pervide anything for pain I can not work the pain is getting so bad itis a daily thing to curl in a ball and cry so I came to this site to see if I can find a cure for my pain and yes I have anti spasm medication itis called Diciclomine and it does not help at all.
hurting is hard and dealing with it daily is harder so I do feel for every one of you OH YA Gerd it bad to try a persciption from your doc called Aciphex
Elizabeth, my name is kelley and i had emergency gallbladder surgery on dec.23 2002.it was laproscopicly done.i have been sick ever since the surgery.2 weeks after my surgery on jan. the 6th 2003,i returned to work and two hours into the day,i was on the floor with severe pain in my right upper quadrant area.i was in the hospital for 5 days and they ran every test under the sun.my liver enzymes were high like 423 high.and 3 months later im still in the same exact predicament.they have sent me to Duke for all these tests and nobody knows anything there.so they keep sending me back to my surgeon who keeps putting me off or giving me bull information.im at my ends wit i just want to give up.what should i do?what are your symptoms.please write back.
the pain is terrible, i have been on tylenol 3 for months
had my surgery dec 17,02 sergeon did not see that i had an
extra hepatic duct,they call it(duct of luschka)by jan 4,03
i was taken to the er they admitted me,they did every test under the sun,even after i told them i just had surgery,they consulted
my sergeon, he told the er doc it was uneventful!
they then proceeded to test me for all forms of vd! all this
while i filled up withbile in my abdomin, i had 6 cat scans
within 8 days i was documented that i was leaking but they could
not decide from where! by jan 8 the doc came in to check on me
at that point my husband said look at my wifes belly she looks
like she is 8 months pregnant,yes i had bile peritionitis
that night my husband went home to take care of our 2yr son
doc calls in am and says, we are taking her into surgery
i was so out of it i had no recolection from the time i went in
on the 4th, and wanted me so sine a release for surgery!
my husband made them wait so he could be there to sign
they pumped out 3liters of bile out and had to wash my abdomin out.
it is now the end of may and im still in a loy of pain
found a new sergeon, he thinks i have mass adhesions,
so i will be going in for another lap to look around,
he says he does not trust anything the other sergeon did
if anyone else has had theese problems, i would like to here from
you it's a lonley world when you feel like this,i did try to back to work,but the pain gets to be so great i can not take it,
and if i eat, my abdomin swells out so i cannot get my pants button
thanks for listihg,best wishes to all, lori
Hey, I read your message about your gall bladder problems. I was wanting to ask; I had my gall bladder removed in September of 02. I have had stomach problems ever since then for the last year, and all kinds of tests have been ran on me and they can't find what was wrong with me. Now I am having dark green stools like I did before I had my gall bladder removed, and I am having pretty bad pain in my upper right side and having severe tenderness there. Do you think it could be the same thing? I don't know what to do. Please send me a message back. I hope you get to feeling better.