Yes Kristi, I think we've both been at this long enough :) Thank you for your prayers and caring. It really means a lot to me. Caring is so powerful.
I'll be getting on FB soon!
I very rarely have the air hunger as you describe it, but I have had it before, although it was not with the Mirena. Maybe during pregnancy, I think. I know how it feels. In fact, my teenage kids (a boy and a girl) have had it before, so I'm wondering if it's just a puberty/hormone thing (?)
My air problem lately and usually is with the forgetting to breathe just as I'm falling asleep. I breathe too shallowly, and then exhale one last time, and then do not inhale again, until I'm yanked awake by an adrenalin rush (obviously my body's way of saying "Breathe, stupid!"). But once I'm awake, I can take a couple deep breaths, and I feel fine and satisfied. I know what you mean about taking deep breaths and it NOT being enough. I don't know if the two problems are related.
On my worst nights, this "forgetting to breathe" will keep me up until the wee hours of the morning, when for some reason I can sometimes drop off for a couple hours. I did have a night last year when I NEVER did get to sleep for almost 3 nights in a row. Anyway, this problem bothered me heavily, most recently, during my period up through ovulation. I've had about 4 good nights in a row, so I guess it's gone for now. I never know when it will pop up, so I feel some dread every night. I'll be having my period in a week or so, I'm feeling anxious about that. For my last 4 nights, it has happened just for a few minutes to 1/2 hour, and then I'm fine the rest of the night. That's a good night for me.
I have been developing some exquisitely sharp, burning pains in my toes, as if someone is holding acid or a hot pin to the skin. No redness. Just the nerves I guess. But it only started recently. It doesn't last for a long time at least and only rarely wakes me up. I prefer that it happen when I'm awake.
I've been thinking more about the molecular mimicry someone posted about recently. I remember a poster from over a year ago who said that her doctor told her she'd developed an allergy to her own progesterone. I always thought that sounded weird and illogical, but if someone did develop an allergy/autoimmune response to a synthetic progestin, then maybe the body WOULD start to attack it's own progesterone. Since progesterone is an important part of the membranes of our cells, especially nerve cells, maybe this is why our brains are under attack? I'm not educated enough to know if this makes sense.