Hi there, I thought I would join your community to see if anyone could advise/help me please?
Please can anyone tell me if there are any other ways besides a colonoscopy to dx crohns disease please? Ive been so sick for the last 2 years and have lost half of my body weight in a 14 month period, my body is not absorbing nutrients and im deficient in the following;
My Gp thinks that this is all in my head and that Iv been dieting :( even though my daughter has a dx of crohns and is exactly like me with her symptoms. Colonoscopy doesnt show anything, yet the stuff you drink to have an mri only took 10 minutes to reach my terminal ileum and they found thickiening in the wall of my sigmoid colon.
The GI dr said its IBS and basically go home and live with it.
My hairs falling out, I have blisters on my gums with a burning mouth, I also have a hiatus hernia. Atm I have pain around my navel with pain in my shoulder blade, its even made me throw up, Iv managed to have a few bowel movements so I dont think its a blockage, but the skin on my tummy seems to be pulled really tight around my navel and its actually protruding more than usual.
I have had these problems since a child worsening with age, please if anyone can advise me it will be so appreciated. I follow a low residue diet, take 80 mg Oxycontin am & pm after weaning myself of 42 tablets a day ( I felt like I was being poisoned & my whole body was bloated) I now use cannabis as my main medication and it relieves the awful burning in my tummy and rectum.
I usually catch every cold or bug, in previous years iv bn so ill after my flu jab, spending nearly 3 mnths with some cough or cold of some description, this year however, i decided against the jab and I have only had a couple of mild colds this winter. I wonder if it was the jab making me so sick, is this possible please?
Im on antibs for a recurrent urine infection also.
Has anyone got any ideas or info on what I may try or where I may find an understanding dr here in the UK
Sorry if its so jumbled but I really have a lot going on with me nd no help from my GP Im waiting a 2nd opinion.
Hope you peeps are having the best day you are able to :)
I had no idea the hernia I have is what has been contributing to my problems, I only developed the hernia after surgery near my diaphragm. Prior to this my bowel problems started around aged 4 yrs old.
I used to get every cough or cold going about, im learning so much from reading myself, I now know what makes me sick if I et it, that has helped lots.
I never realized it could make me so sick. Although I am not sure about getting it massaged back, as my daughter is qaulified alternative therapy & sports massage, but she says your not allowed to get a massage with a hiatal hernia, I'll read some more, but just wanted to say thank you.
you're welcome and good luck. It took me few years to realize it was hernia that made me sick and now when I eat right and massage my belly everyday I'm fine. Unfortunately no doctor
will tell you that because firstly they don't know or care and secondly they prefer to sell you drugs anyway.
One more tip, increase amount of water you drink - it helps fix hernia but also hernia can develop because dehydration and most adults are not drinking enough water.
To bring myself back to a better state of health I used Hulda Clark 's programs. This is one of the programs featured at the Liver Flush Support Forum to restore digestive and whole body health and the different peograms are effective for many people. There are also individual forums for these health experts. Even with the programs for parasites, improving kidney and liver function and detoxing pollutants and toxins in the body I still had to find out the underlying problem which in my case was Celiac Disease and a form of Leaky Gut Syndrome caused by gluten sensitivity and intolerance.
Find out from your Dr if you have been tested for Celiac Disease. If the tests were negative it may have been because you did not follow a gluten challange diet before having the tests done. Even then about 20% of people will give a false negative so it may be necessary to have a DNA genetic marker test or a Molecular Serology test to rule out this problem.
The Specific Carbohydrate Diet is for people with IBS and works well for people who cannot tolerate gluten in wheat, barley and rye.