I saw this article that Clare posted on the BAN Mirena Facebook page, and I was sickened--but intrigued.
Many of us have had vision issues since the Mirena, and this article really discusses that connection. This is from a research institute, and it discusses the Norplant--but as we all now know, the Mirena basically IS the Norplant....it is just placed in a different spot in our bodies and given a different name.
Anyway, I put the article in my blog, but I would love to hear what you all think about this. Have any of you been tested for this type of "pseudo-tumor"?
It is sickening that these companies know exactly what it is doing and yet will just keep re-marketing it over and over. Makes me cringe.
Here's the link. I'd love to get a bit of a dialogue going.....
I read this too. It is sickening. I have had blurriness at different times but it is mostly gone now. I went into a panic earlier in the year when I went through a point where I was very blurry for a couple of weeks. My eye Dr did all of the tests including a dialated optic scan but didn't find anything.
I am so sad for these women. At least we have options in medical care, they have none. They didn't even have the option to get it out while it poisoned their bodies. They don't have the power to fight or even the ability to gain knowledge through the use of this and other websites. Eventhough we are not happy this has happened to us, we could always have it worse and are lucky to live where we do.
I also had my eyes checked, and physically, they look fine. I'm wondering, though, if pseudo-tumor cerebri may only be able to be detected in a brain MRI or something. If it is increased fluid in the brain, a check on the eyes probably wouldn't find it, don't you think?
I'm going to have to look into the best way to check for it. My vision seems to be getting worse by the month....it is the only ongoing symptom that I have left, but it really concerns me.
I'm sorry to hear ur eyesight is getting worst by the month. Glad to hear its the only symptom you have left of the Mirena. Wish I was close to totally healing. If this is ur situation is there a cure for this ailment. How is fluid drained from the brain? Gotta do some research on this bc my eyesight hadn't gotten any better neither. Wish u the best and you I know ur proud majority of your symptons are gone.
Disregard the questions regarding treatment because I googled the type of tumor and actually to the site one is exposed to this tumor from birth control and the tumor is treatable and reversible although vision loss maybe permanent. Also this tumor causes hypothyroidism which is what natural docs say I have. Wow!!! Have to read more but right now my head hurts and recently I have been coughing non-stop. Feels like some particles are in my throat choking me.
I'm speechless and very much saddened about the way we were all mistreated, lied to, degraded, and left to die. Their stories sounds much like ours. I remember demanding my doc to remove the Iud when I explained many of the same symptoms. Shaking my head in disgust about how these industries will go to great lengths for money while we're denied treatment and clueless about how to get treated. I wanted to ask you all what do you think the doc meant when she said If cathy experienced another such episode her eyesight would be taken away in its entirety? Around Paragraph 6. Is pseudo-tumor cerebri curable? Or should we expect our health to deteriote even after removal? I need a cure!! Shaking my head even hurts, reading and writing makes my head feel tight and an exploding type of feeling, after eating my head and eyesight worsten. Highly lit places makes me feel worst too. Will show my doc this article And request another MRI. Had one but was told it was normal.
Its absolutely frightning, my vision was my first symptom. Followed by almost all the symptoms possible you could get. I did get a cat scan and an MRI of my brain and behind my eyes, they found nothing. They had talked about that type of tumor, they let me get the MRI since my mother has a brain tumor a very serious one. So not sure if they would have done one so quickly, who knows. Found nothing and found the idea of Mirena doing this to me as ridiculous as me freaking out, feeling like I am dying.
I am about 10months post, feeling great. My eyes never returned back to normal, some days they are better then others. I do have a job that strain my eyes alot so that might not help either. And it is like double vision, one word on top of the other. I have seen numerous eye docs and they also find nothing I just need glasses somedays more then others. Its frustrating but coming to grips with it. I have tones of floaters that I have become used of seeing so I don't really see them unless I look for them. My anxiety is totally gone, I feel normal and my only reminder is my eyes and vision. I am 7 and a half months pregnant and the pregnancy is going very well. Just the normal pregnancy issues that can come out. I know that it can only get better from here, no going backwards. I will NEVER put something in my body that seems to good to be true or too easy! Cause there is always a cost!
I feel blessed to live in a country were we have a voice, those poor woman in those countries must of felt helpless and that is soo sad! Its disgusting! Happy to see reports on this tho, cause the word is getting out there.
Shira Shira--bright florescent lighting is an issue for me as well. There have been times that I have had to leave the grocery store because the lights are to the point of making me woozy. Other days, it doesn't bother me at all. It is so strange. I need to get it figured out, though, because I will be returning to teaching in a couple of years, and all classrooms have those bright florescent lights.
EskaArabian--the "one word on top of the other" phrase you use is interesting. When I get my eyes checked, my bad eye makes each word look as if someone locked their finger, put them on the words and smeared them downward. that is how I would describe it for me.
Well, I spoke with my husband, and we have decided to start finding a specialist to get tested to the pseudo-tumor cerebri. There are just too many fingers pointing in that direction, and I already have to take medication for premature glaucoma. I can't risk having something else that also threatens to make me go blind.
Yeah somedays it's a factor and I find myself running out of buildings with the flourescent lighting bc I feel like I'm going to faint. I too plan to look into a specialist that will test me for the pseudo tumor to see if this is an issue for me. I plan to see my doctor on Tuesday and hopefully he can refer me to a specialist. Thanks! Keep me posted!