I just thought I'd inform everyone who knows of the Mirena Awareness website, that it will be shutting down at the end of August. It saddens me to make such a decision, but due to the blatant lack of support, I have no other choice. I have stated many times that I wanted to grow Mirena Awareness and get its message to women around the world and to have more research done on this IUD, but without your support that is not possible.
thats one less pivotal site. when you search the web for people who have the side effects like all of us have shared so little pops up and it makes it that much easier for health care providers to believe our story. :( what would it take to keep mirena awareness going?
this has become pivotal in my life. making sure everyone knows what its all about, but i never make it about me i make it about us, the people of this forum, the ones who are crippled because of the IUD i tell a story as a whole because its important for people to know it didnt just happen to me but ruined other beautiful womens lives too. what would it take to keep it going?
The reason I chose to make this decision was because for some reason, there was a lot of skepticism from people when Mirena Awareness was asking for donations. This shocked me since so many people claimed to "support" the mission of Mirena Awareness. I clearly explained what the donations would be used for(pay for an official website, market it more globally to reach more women, grow the organiztion, etc), but depsite this information many just turned their heads. It almost felt like a slap in the face, especially since I put so much time and effort to get the message out to women and did so much research, and even had some other people helping out with that. I wanted to help prevent other women from being a victim of this IUD, like myself and so many others. It was a tough decision, but I felt that I had no other choice. Without support and with people's scrutiny, Mirena Awareness cannot go much further. I am glad that the site has been useful to you though. I'm glad it at least achieved that goal.
I'm really sorry that you don't feel supported. You know all of us want the message out there, but my personal situation is that I am unable to work due to what Mirena has done to me and therefore have a very small ammount of money available to me. I think what you have been doing is amazing, I am just not able to help financially. There must be a way. Maybe we can all think of ways to achieve this.
Thank you for your kinds words Clare. I'm also very sorry to hear that the Mirena has caused you to be unable to work. Stories like that are what drove to me to want to take it global. If you can think of anything, just let me know.
I don't know very much about websites. Is there any possibility of having sponsors or advertisers on the site, such as this site has? I've seen blogs that have ads. I think very few websites are totally self supporting, but beyond that I have little knowledge about setting up websites.
Thank you for all the work you've done.
If it's a question of having people write in to share their stories or show number of hits, I'd be glad to help. I was so grateful to find out that I wasn't alone when, just 2-3 weeks after placement, I developed all sorts of debilitating and unmistakable side effects to the Mirena. My doctor did not believe me, either. I knew for certain it was wrong for my body, but I felt bad contradicting my doctor, who claimed that the Mirena would not cause side effects. So I was extremely glad when I began researching and found that I was not alone.
If there's any chance advertisers can help keep it afloat, I'd be glad to contribute my story, and to look in on the site. Advertisers like "hits," and I'm happy to be a frequent one for this cause.
I'm in the process of looking for sponsors and advertisers for the site. If I'm able to get something like that going, that would definitely help keep the site going. I'll keep you ladies posted and if you're able to find any potential sponsors or advertisers, please let me know.
Thanks Jenny. I'm glad you found some helpful information as well.
I read your past posts and I see you are almost 3 years post Mirena. I just would like to know how you are doing at this point? Are you 100% better? If not, what symptoms do you still have? Has there been great improvement over the 30+ months that it has been out? I hope that you have completely recovered by now!! Thanks, Jackie
I'm doing much better, but I do still have some lingering affects from the Mirena. I was diagnosed with asthma post Mirena, which makes me very sensitive to cold air now. I also still have occasional numbness on my left side. My immune system is getting stronger(antibiotics almost destroyed it because my doctors were trying to treat continuous bouts of bronchitis in me post Mirena). I'd say I'm 75% better and still hoping that I get 100% better one day. How are you doing?
When did you stop accepting new people? I tried creating a login before I knew the website was shutting down. There have been many discussions I have tried to reply to, but I can only reply if I am a member.
I think it's a shame you are shutting the website down. It has been a tremendous help to me and a huge eye opener. Since finding all of these websites and hearing other womens stories, I am now having my mirena removed on the 5th of August so I can begin the road to recovery.
copy and post all of the info to weebly.com i posted about mirena there. there are lots of free places to post about mirena merina marina. some women have it and have ever seen one or even know how to spell it. also connect hersfoundation.com and ditchthepill.org