Hi everyone, I'm new to this forum, but I've been posting on the adrenal fatigue forum for awhile. I'm a female, age 34 and I have adrenal insufficiency, and told my doc I was worried I had Lymes disease, also. I thought I'd been bitten 2 summmers ago, after which I found a round red rash on my leg, and I got extremely weak, headaches, then I crashed with severe adrenal fatigue months after that. Feel like an 90 yr. old woman, had to quit working, gastro problems, anxiety and panic, hypoglycemia, lost 20 lbs, dizzy, passing out, in and out of ER.
Here are my test results. I was "nonreactive" for Lyme (IGG,M) at these KD Bands: 93, 66, , 58, and 45.
However, I was found to be "reactive" for Lyme AB (IGG,M) at the 41 KD (IGM)Band, and was also "reactive" at the 41 KD (IGG)Band.
Under the 41 KD (IGM) result is a paragraph stating "IgG Western Blots which have 2 (or more) of the 3 significant bands are considered positive for specific antibody to B. burgdorferi."
Then, under the 41 KD (IGG) result is a paragraph stating "IgG Western Blots which have 5 (or more) of the 10 significant bands are considered positive for specific antibody to B. burgdorferi."
I tested "non" reactive" for the 39, 30, 28, 23, and 18 bands.
Would love any input about these results!! I got these tests last March, but was too sick to make a follow up appointment with the neurologist who ran the tests. I was stuck at home, bedridden. Finally this week i was well enough to see my primary care doc, who looked at the results on his computer when I was with him, but didn't tell me anything was abnormal. I didn't see the lyme results and the "flags" until after I got home and looked over the results myself. Why didn't my doc see this and tell me about it???
Also, I tested low in DHEA with a result of 31, and range of 40-325.
like I keep telling everybody else, you cannoot see a regular doctor for this. They simply aren't educated enough or informed enough to treat you regarding lyme. I'm quite serious. They are simply totally uninformed
You must go see a "lyme literate Doctor"
they are actually informed enough and educated enough on the subject of lyme to read the test results and to administer a antibiotic protocol that will actually help you. My own, totally non-professional, opinion is that you most definitely have Lyme disease. And the sooner you deal with it the better, because generally speaking it doesn't get better on its own once itgets to this stage
in the meanwhile you might start investigating rife machines as a lyme treatment.
Tizona, Thanks for your response! It doesn't seem like this board is very active, but I'm very glad you responded. I don't have insurance and make infrequent trips to the dr. because I'm just too weak and tired. I thought adrenal fatigue was the worst of my problems, but guess not! I heard that the two go hand in hand sometimes, and that people whose immune systoms are weak are more likely to be affected by a bite from a tick carrying lyme, whereas people who are robust, strong with healthy immune systoms can get bitten by a lyme infested tick and never get lyme disease!
first off I want to make it clear that I don't know for sure you have lyme disease. However, I certainly think it's a very good chance
I have only known two approaches to this disease that have consistently worked for many people. The first is the correct prescription antibiotic protocol. That of course must be administered by a medical doctor
The second is rife machine therapy. The best type of rife machine for lyme is a type called the "coil machine", which uses electromagnetic fields.
Unfortunately these machines are not cheap. Although if you are paying out of pocket for the antibiotic protocol, in the long run they are actually much cheaper
There only two places that make these machines that I know
Thanks for the links. I am allergic to amoxcillin, penecillin, minocycline, doxcylcine and meds in this family. So I am out of luck here, I guess.
I guess I should feel good that I had enough antibodies produced against the lyme showing up on the test. People who are recovering from lyme supposedly take this as a sign that their body is fighting back and they are improving.
I got adrenal fatigue about 8 months after I would have been exposed to the lyme. I feel like most of my symptoms are primarily adrenal related. I am going to focus on improving my adrenal glands because I don't have insurance/money to go to the dr, let alone a lyme literate doctor.
Thanks for the links! I checked out the betterhealthguy site, and am impressed. The things he listed that are "wrong" with him are the same combinations of things "wrong" with me. Puzzle peices possibly fitting together!
the problem is that if it is the Lyme bacteria that is the root cause of your adrenal fatigue, then all of the normal adrenal fatigue remedies will not work. you'll spend a lot of time and a lot of energy and a lot of money all for nothing
I know this is difficult to hear, but *IF* your problems are a result of Lyme disease than nothing is going to help you or make you feel better or help you improve until you address that root cause
Of course I cannot say for sure whether or not your problems are caused by lyme disease
Tizona, yes... it is difficult for me to hear that I need to look into treating the Lyme first, if that's what I have and if that's what caused the adrenal problems in the first place. But I guess I need to hear this. Just one more health problem to tackle!
I forgot to mention that I also tested positive for Epstein Bar Virus/ EBV, a surprise to me. I did a little research and I read that having EBV can cause a false positive for Lyme. Anyone have experience with this corrolation?
I also tested positive for EBV but apparently 90% of the population has it as well, so very common. My Canadian Lyme test (Elisa) test came out negative 2 out of 2 times, I have now sent my blood sample to the US to be test (at my own expense).