Hello fellow Lyme Disease sufferers. I thought I should share my own personal experience with Lyme disease and the hell I went through...but came out on the "other side", so there is hope!
I contracted lyme disease many years ago, while on a trip to northern CA- before it became a well known disease. Since I live in the northwest, where lyme disease is very uncommon, it took quite a while for the diagnosis to be confirmed. I first had the bite looked at, before I had any real symptoms except fatigue. Naturally the doctor said don't worry- but I was worried! The bite was growing so big & I never saw anything like it- it was scary, not normal- but classic. About a week went by, and by that time, all my joints were so swelled up- I was in so much pain all over my body. I had no strength to even pull the blanket up over myself. I was foggy, couldn't sleep, and felt helpless. First I was put on several runs of oral antibiotics. When that didn't help I was put on intravenous antibiotics. Still nothing helped. My husband and I both started researching. We both were interested in natural medicine and particularly oriental medicine and the ancient Science of Ayurveda (from India)We read about a well known herb called NEEM that has been used for thousands of years for many different diseases and symptoms- often working like an antibiotic, without all the harmful side effects. Knowing that herbal medicine can often take a while to get the full effects, unlike western medicine- I decided to try this Neem- what did I have to lose?! I started taking about 2,000 mg. a day. It took 3-4 months, but gradually my symptoms started going away. After 6 months I reduced my dose to 1,000 mg. a day- by that time I had just some swelling in some of my joints- but nothing like before. Since that time I have put it to the test by taking breaks from it, and after a week or two of being off the Neem my symptoms will return. I know I have this bug in my body and will for my whole life- but I also have a way of controlling it so I can lead a normal life. The one side effect from taking the neem is that it can dry out my skin (which is a small price to pay) So I also found out recently that oil of oregano can be taken for a week or two when I want to take a break from the Neem. It is also important to have a good quality product. Neem extract is more powerful than the whole herb and it should be organic. For many years I have been taking the products sold by Tattva's Herbs, which are very pure and dependably good quality. I also found that I have to keep my immune system strong in order to fight off the nasty attacks. The product I found to keep my strength up is called Chyawanprash...I haven't even caught a cold, flu or anything else that is contagious since I've been on it. I hope this information can be of help for some of you who are suffering from Lyme disease. Patience is important, as it does take a while to take effect- but its worked for me for over a decade, and I know it has helped other people as well. There is hope!!
I looked the Chyawanprash up- thanks for the info. Until a few months ago, I had never heard much about Amla, and Triphala- but I see the Amla is the main thing in this too. High in natural Vitamin C. http://www.tattvasherbs.com/chyawanprash.htm
One of the things that bothers me about the testing Dr's do for "Lyme", is what exactly are they checking for? Borrelia B usually, and not the other known pathogens that are almost always involved too.
I live in the Western US, and Rocky Mtn Spotted Fever was what they told me I was so sick from 40 years ago, from a tick bite. The old country Dr put me on some kind of antibiotic at that time, but little did I know how much more is involved, and how long this stuff can be a problem. The different pathogens definetely go through "cycles", and can also continue to be a problem because of going into "cyst form", unrecognized by the immune system, only to re-emerge even stronger at a later time. Antibiotics are a cause of that too.
Kinesiology (muscle testing), and the Biomeridian computer testing, has showed alot more involved than just Borrelia B. The interesting thing too, is for the longest time, I muscle tested that a powdered Noni was something I needed to stay on. Come to find out later, Noni, and Neem both work to hit Lyme pathogens.
You might look into the other herbals products that have been useful for other's for hitting Lyme too. What I've found more often than not, is it's important to make changes in what you are taking, and not stay on the same one all the time. What hits one type of pathogen, doesn't hit another type. Neem has worked well for me for also killing parasites, but I do think rotating is important.
Thank you for sharing your story!!! I have had Lyme's a long time also and you give me hope!
May I ask, since the herbs from Tattva are concentrated extracts, how did you decide on 2000 mgs? Did you use the Boswellia or Tumeric with the Neem? If so, how many mgs?
Also did you take the Nemm with or without food, evenly spaced?
Interestingly, I just started trying Indian herbs by Hesh for my hair and skin. The facial cleanser, clay and neem powders caused such a reaction in my skin, I knew it was killing something! Also, I had a reaction in my BODY from a face mask! I thought,' if the Neem , in particular, is so powerful topically, what could it do if taken orally?' I searched Neem and came up with your post!
I apologize for taking so long in responding to your message.
To answer some of your questions: Yes, I did add the Boswellia and Turmeric into the mix. I still take Turmeric daily (there are so many health benefits!) and I take Boswellia for inflammation & pain.
The dose I came up with was simple trial and error. I felt so desperate, (and knowing there were very few harmful side effects except for the dry skin) I kept increasing the dosage. I don't think it matters if you take it with food or not- but it can't hurt to have something in your stomach, especially at the higher doses.
Since I posted my message I have heard many stories of people having success with these herbs in treatment programs. One of the main things I need to point out in my own struggle, is that herbs work deep within the body, and unlike pharmaceuticals don't give immediate results...so patience and endurance are important. Also, from my own experience-standardized extracts are more potent, and more effective than the whole herb.
I recently had to stop taking NEEM for 10 days and was slammed with the debilitating effects of this disease again. I feel so fortunate to have an answer!
I am back on 1500 mg. of the NEEM extract (Co2) and I am taking a combination of TURMERIC EXTRACT and BOSWELLIA for the pain and swelling in my joints. I take 2-3 TURMERIC a day, and up to 5 of the BOSWELLIA while the symptoms are so bad. Since I have also had a bit of an upset stomach, I'm taking these supplements with food.