My daughter is autistic with a bacterial and yeast infection both. She is currently on nystatin and every time I have tried to introduce probiotics she seems to be in a lot of pain and mental anguish. The Dr. prescribed Therbiotic Compleate. The dosage was supposed to be 1/4 tsp at bed time. We cut that back to 1/8 tsp. Still a lot of pain. She has been off of it since December and I started it again last night at 1/16 tsp as she is now on Nystatin and I finally got her to sleep about 1:30 Slept all the rest of the night and ate breakfast but seems to still be in a lot of discomfort. The Previous two times we tried it were undoable with severe constipation. This not as bad at least I got her to poo this morning and it is not that sticky green stuff but darker than normal. Any body have any suggestions. Thanks
Not everyone tolerates probiotics in freeze dried form...if you have a leaky gut they just get out into your blood stream and make things worse. I could never tolerate anything other than raw cultured sauerkraut. I think it treid just about all brands too. I actually heard about this brand i eat on an Autism forum. It's by Rejuvenative Foods http://www.rejuvenative.com
It is a living food so it is easier to digest.
I feel for you. I hope you find some alternatives to help your little girl.
Your kid likely has Candida. I took Nilstat for 10 years, to cure/suppress my ulcerative colitis. Life was fairly normal during that time, but my health slowly degraded over time. Until I had major liver problems and was forced to stop the Nilstat.
If I were you, I'd get her off Nilstat and have her take a probiotic called Threelac. As a short term solution. The only long term solution that works is diet/lifestyle changes.
Concerning probiotics, except for Threelac, I didn't really feel they helped me at all. If my Candida was under control, they didn't seem to do anything. If my Candida wasn't under control, they made my bum itch sometimes. In general, probiotics are just not strong enough to make a difference, especially if you're comparing them to an antifungal like Nilstat. That was my experience anyway.
I second the fermented foods. I have taken probiotics for years and I notices small reactions from them, they would cause weird smells in my sinuses, night time sweating, and achiness. I put off trying kefir forever because I had candida and sinus issues. I finally broke down and bought some kefir grains and have never looked back. Drinking kefir is supposed to give you tons more probiotics than pills do, but I feel great on it. It didn't affect my sinuses, in fact my sinuses are actually better than they have ever been. I feel just healthy drinking kefir. I sweeten mine with stevia and it is good, but if you want to get away from the Sugar levels for candida purposes you could definitely try the fermented beet juice or fermented cabbage and see if she is able to tolerate it with out pain.
My doctor suggests culturelle for his autistic patients as many have problems tolerating probiotics and that one is usually tolerated better than others.
I am one that can't tolerate probiotics, not even the culturelle. My boyfriend, who tolerates everything, has has good results with his digestion when he takes that type as compared to other probiotics he has tried.