I have no insurance, as do possibly a few of you on this forum... For those that do but many of your procedures are not covered for via insurance try this address and they MAY pay for it (full or part or none, just depends on the person trying to get assistance)
But here it is:
Bayer Healthcare Pharmaceutical
Ms-W65 6th West Belt
Wayne, NJ 07470
Attention Medical Communications Department
The number I called was 888-842-2937.... listen to the voice and press the number according to which you are wanting. I connected myself to the adverse reactions on Mirena... She stated that anyone who is having adverse effects should call their dr. and they are SUPPOSED to tell them in that department what's going on.... but she said that there aren't very many doctors that uphold that.... so since no one will take care of us except ourselves--EVERYONE call that number and tell them the symptoms/side effects, etc.... She didn't know about this site, nor the number of individuals who have complaints... so let's call these people and get Mirena OFF the market... for GOOD!
So funny- I was posting to you to call Bayer and you were doing it already! Good for you for finding more info. They are pretty helpful though there are a few ladies who didn't get the help they were looking for from them- look at posts a few pages back
i paid out of pocket 3 years ago because i would have had to wait a month for removal and plus my dr didn't care to see me again. i guess i could do my part of contacting them for reimburstment.
i don't have the patience to talk to these people that are out of reach LOL so if you are going to contact the FDA could you ask them what dummy or dummies approved the mirena and tell them we know its Norplant in the shape of an IUD and is twice as dangerous.
keep calling,sometimess you only have to pay 20% upfront without. i'm sure i can get a copy of my bill. they like to blame our complications on the dirty hands of the doctor or misplacement by the doctors.
There are plenty of clinics that work with patients with no insurance or lack of coverage. They require proof of income or lack there of because they work on sliding fees and often receive grants. Planned Parenthood removed mine at my annual exam and because of my income, I payed a twenty dollar co pay. Look in your phone books for feminist health clinics, Planned Parenthood offices, and call your local Department of Health and Human Services offices. Even if you can't get to there offices, they often have the names of local clinics that see uninsured patients. The resources are out there, you just have to become your own advocate and find them. Why screw around with the drug companies who offer reimbursement for removal, but deny any knowledge of side effects. The mirena may be effective in 90% of women worldwide, but that may mean the other 10% could translate to thousands of women with side effects. I don't think it should be removed from the market because it is the safest and most reliable BC for women around the world who really have no access to other costly methods and inadequate medical care. I think the side effects should be recognized and published and given to women so they can make an informed decision for themselves. We should not take the right to safe and effective birth control away from women just because we were mislead.
Mothermayhem, I agree with you on the fact it should not be pulled from the market just yet. I know a few pwople that have not been affected like most of us on here have. I think it should be updated on the possible side-effects and that it should be in writing for the comsumers.
The issue I found with Planned Parenthood was there was a waiting list to even be seen, though I do live in a large city. The clinic I visited flat out refused to take it out and told me it was not the Mirena causing my issues. Funny thing is I am feeling better since removal.
I think it's nuts that a medical facility will not remove any IUD. It shouldn't matter if our evidence of the side effects are mostly anecdotal. We didn't sign a contract agreeing to host the Mirena in our bodies for 5-9 years. It is a foreign object in our bodies and we had the choice to have it inserted and we have the choice to have it removed. Everyone needs to stand up for their health and wellness, and make their providers do their jobs. But everyone should go to their appointments considering their provider an advisary who needs to be strong armed into doing their job. It's a lot easier to find a new doctor than to live with the side effects of the Mirena.
I live in NH, and there are three Planned Parenthoods, one feminist health center, and three clinics for uninsured peoples within 40 minutes of my house. After I found this forum, it took me three weeks to build up the gumption to call for an appointment, because I knew I would have to argue my case, and then my appointment was 10 days later. And like you, the NP was not convinced by my anecdotal evidence that the Mirena was the cause of my symptoms. I had my thyroid hormones and estrogen levels tested the same week I had the Mirena removed and they were both "conservatively" normal. She said it was all stress related, which I find ironic because if I was taking an oral contraceptive I beleive whole heartedly she would tell me my syptoms were related to the hormones in my body and it would eventually adjust. At this appointment, she tried to talk me out of removal because of my accidental pregnancy on the mini-pill and said I should consult with my endocrinologist on BC before I removed it. I explained to her, that he was not well informed about the Mirena, he didn't know that light or no periods were related to it, and I didn't trust his opinion on the subject ( I do like my doctor)and most of all it was my decision and I wanted it out now. She recomended the Nuva Ring for BC, which seemed like an external Mirena to me, same hormone, same location, and works on similar principals and I said "No, and can I have some of the free condoms". I felt better the next day. I woke up and the fog had lifted from my head and my joints felt better. I know I made the right decision. I'm very determined and I knew that I would have to stand my ground and not give in the slightest. I think everyone who wants it out and goes to a medical facility to have it removed should stand their ground and if the nurse says no, go to her/his superior, on up the ladder until you get a satisfactory answer.
i totally agree with you..i had mirena put in because my doctor suggested it AND i knew plenty of women who had it and never had any real problems...i on the other hand, had SEVERE reactions...but none the less, i don't think it should be pulled yet either, but women should know EVERY POSSIBLE side effect.......how can anyone make "the right" decision without all the facts???....
Many of you make very good points with Planned Parenthood and feminist offices... I had an appt with planned parenthood but the pain was so bad, I wanted it out--TODAY.
I have to pay $212 out of pocket, but as soon as they pulled it out--my pain was gone... the pressure was gone--and it was, honestly, the best feeling in the world...
I don't think Mirena should be entirely pulled since it has been on the market for 16 years already--maybe they had a bad batch with more hormone levels?? I don't know--but I know I'm never getting an IUD again... They do just need to do a little more research on what this product CAN cause....
I'm so glad that I saw this site--and I appreciate you all for commenting and your words of encouragement....
sometimes you have to go above and beyond just to reach your goal. if we just want it safely labeled then we must let them know we are serious about spreading the word about the side effects that creep up.
I have no insurance and I have the IUD. I went to the doctor 3wks ago to hopefully have it removed come to find out i have to have surgery to get it tooken out. If I pay out if Pocket to have it removed its $4,000 i dnt have that kind of money. Could anyone give some advice on what i should do. HELP