Please, i have a friend whose young child (4 yrs) has been fairly recently diagnosed with some strange disease they've termed "minimal change disease." It is some rare kidney disase and they don't know the cause. I always suspect vaccines or some other toxic exposure (it happened right after they did some major work on their home). Now he is on massive doses of steroids, otherwise he swells up with water retention like a balloon. They say he's become steroid-dependent, however, and so now they want to switch him to some other cancer drug, which of course has many adverse side-effects. One causes osteoporosis by the time he's in his 20's and the other could cause cancer (leukemia). So, she is in a quandry what to do. Thinks she has no other options.
Has anyone else out there heard of this disease or have any suggestions of what she might try? I got her to try mangosteen juice for a while, a natural anti-inflamatory and it helped a bit, but they couldn't afford the cost. She also tried some other natural remedy,and again, it helped, but not enough and the cost became an issue as it's very expensive. anyway, any help anyone oculd provide would be appreciated. Thanks in advance for any help. This is my first posting, so hope i'm doing this right.Merry Christmas, happy holidays, and good health to you all.
Hello, my name is Joanne and I am 29 years old. I was diagnosed with minimal change in July of this year. What started it was that all of a sudden my lower legs started to swell and I had muscle cramps. I went to see my dr and they told me that I was retaining water and to elevate my legs and cut salt out of my diet. Then about two weeks later my tummy started to swell as did my eye lids and my feet and legs got so badly swollen that I could no longer wear socks without turning my feet blue and none of my clothes fit. I went back to my dr and they tested my urine and there was protein in my urine. My doctor did a blood test and had me do a 24 hour urine test, my alb. (protein) level in my blood was 9! The protein in my urine was +9! My dr said I was nephrotic (?spelling). My dr then put me on diuretic (water tables) and made an appointment for me with a kidney specialist. I then had a ultrasound done of my kidney's and the ultrasound came back normal, then I had a kidney biopsy and that came back normal- which meant I had minimal change. I have been on steroids since July 2007, the starting dose was 80mg, and I was also given omeperazole tablets to ensure I do not get ulcers because steroids can cause ulcers and stomach problems, I was also given calcium/vit. D tablets because steroids can damage your bones. Within a month of starting the steroids my urine tested 0 for protein and my alb. (protein) level in my blood started to slowly rise. The renal specialist lowered my steroid dose slowly every few weeks until I was at 40mg and then I relapsed and there was protein in my urine again, so they had to bump up my steroid dose to 60mg. Then we slowly started to lower it down again as soon as there was no protein in my urine again. I have now been on the steroids since July= 5 months and I am now at 12.5mg but this week I have been told that there is once again protein in my urine, however, it is only a tiny amount +1 we are going to sit tight this time and stay at the level of steroids I am on and wait and see what happens. It this does not work they are going to put me on immunosurpressive (?sp) drugs.
The side effects I have had from the steroids have been- hair thinning, my face/tummy are swollen with fat, I am eating a LOT more, I have acne on my face, shoulders, chest and back, dry skin on legs-very oily skin on face, not sleeping well, very hyper, plus others.
Minimal change is a childhood illness and is very common, it is very rare with adults, most children grow out of it without any lasting effects. Actually, at the specialist clinic I have to go to to see my renal/kidney specialist most of the people there are in fact children and they are all doing really well.
Its been traced back to a vaccine. I can tell you either way you go with the drugs you may look at problems. I had steroids for 10 year and then cytoxan. I did not come down with lekemia. But i do have fibro/cfs now.
Protien in the urine can be a sign of kidney damage from mercury. Dont know if thats the case with you but its worth lookin into.
Im in heavy metal detox now for mercury and lead.
maybe get him metal tested, if positive do some energy healing on the kidney/adrenals (acuscope, diapulse, acupuncture, microcurrent etc.) and do a mercury chelation?
One can make a tincture yourself for about a 90% savings that are stronger than most products on the market. If you want to know how to make a tincture, ask and I will post it. be sure when it settles the herbs at the bottom take up 50-75% of the jar and the liquid 25-50%.
Parsley root can be found at some miejers ..they look like white carrots with a parsley type foliage similar looking to but NOT the same as parsnips. If you cannot find them, goggle parsley root and the words bulk herbs. same for the dandelion...leaves be found in the store but not roots but pick in a place not by the road or purchase via bulk herbs and make a tincture. Tinctures last for decades so it is cost effective.
some local health food stores selling bulk herbs probably have dandelion but not likely to have parsley root. Also make a little parsley tincture to take in addition.
Dr Christopher saved his sister's life who was only given to morning to die. she had swollen to over twice here size by giving her parsley root. also dandelion works as well as the drug lasix.
follow the directions at the links for dosing. the general dose for tinctures is 60 drops (2 droppersful) 3-5 times a day, but if different directions are given at the link follow those.
A child's (or pets) dose is found according to the weight. Use Clark's rule found here